Thursday, April 2, 2020

No woman no cry

Thank you to the person that cancelled is all I can say. 
So after consistent calling to Southampton, by some miracle I have a cancellation appointment in the hospital tomorrow with the NHS MS neurologist doctor. That’s two weeks earlier than my original so really happy with that and to finally get the process started. I’ve been increasingly worried about it getting postponed due to the current pandemic, but the doctor phoned me on Wednesday to confirm he would still like to see me and to see in person how the MS has affected me. Of course, it is extremely worrying going into hospital at this time in history, and I won’t be doing it in haste, masks and gloves at the ready and in balance we agree it’s still the right thing to do. Thanks for the offer of the marigold loan everyone!

Our lives have been taken over by Covid-19, a craziness I never thought I’d ever see, and I hope that everyone is coping with their new found home life and surviving as best possible, keeping positive and healthy. 

TBH honest if we didn’t have TheHangar, garage gym the amazing handiwork of Neilly, I’m not sure how I’d be surviving, but as it happens I am OK, anxiety probably doubled on top of MS but I have come to be used to that! Our morning WOD and virtual coffee with the girls, lunchtime WOD with @CrossFitBasingstoke, the afternoon to do bills and sorting and a late afternoon walk with Neilly, followed by the daily Coronavirus update and a vino or two - well it’s getting us through! I’m scaling as much as possible though, given my jelly legs and annoying fatigue. A WOD could mean a yoga session, and I do try to have half an hour meditation lie down in the afternoon with Fizz. Well what I’m trying to say, is that we’re OK, I’m sure following the doctor tomorrow he might have a different way I should progress, but until told otherwise it is OK, we’re surviving, and I’m normally in bed before 9pm with a book! 

Oh and the camper van Lego set has been ordered for a new hobby, if I’m allowed by the husband to have a go!

My sleeping has been up and down, but in a better way for sure, and I seem at the moment to have found a slightly better mix of drugs though, and sticking with them for now. Although, I’m unconvinced by the Melatonin (although a lot better than the last), prescribed for the night, so have decided to take them every other day as a test. Whether that’s ‘the thing’ to do I’m not sure and I’m making the rules up as I go. Oh and update from last time, I can now successfully swallow five pills at the same time - one of my major achievements in life.

I have also bought a pipe and contemplating the medicinal MS solution of a spliff before bed and whether to take up an offer of ‘sorting us out’! Anyway, what do you mean it’s not legal in this country? Well I’ve tried CBD and not sure I’ve seen any results from that.....comments to my insta please! 

Quick one today and will let you know how it goes tomorrow!

Han xx





2 comments:

  1. Good luck today Hannah :) have thoroughly enjoyed reading your blog (not sure if that's the right way to word it) but it's really interesting to hear about how you're dealing with your diagnosis and how its impacting. I think you're amazing ❤ keep us posted how today goes xxx

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